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Showing posts with label caregiving. Show all posts
Showing posts with label caregiving. Show all posts

Saturday, May 07, 2022

Weekend Onesie: Mother's Day

Weekend Onesie: Mother's Day

Tomorrow, another holiday is upon us. This one? To honor those who bring us into the world. Sometimes, for various reasons,  their responsibilities end there, but, more often than not, they also nurture and care for us until such a time as we begin to resent or rebel against them. 

Yes, defining ourselves, separate from our mothers.... quite the task. More difficult for some than others. 

I wish I knew the secret.

Mothers are a bit like the mob... just when you think you're out, they pull you back in.

Of course, these comments reflect only my own, very personal experience. I'm sure there are a lot of boys out there who treasure their mums, and I do treasure mine... though I do long for a bit more distance between us. 

I will admit it. I suffer from caregivers burnout. I want the best for my mother, but I've been providing almost daily care for her since she and my father moved into the house across the street. My father's been gone now for sometime, but she has soldiered on in that oversized house. During the days of COVID, I watched her diminish a bit, lose some of her vitality and strength. She dithers a bit, now. Her balance, observably questionable. I fear for her safety and I fear I can no longer keep her safe. 

I discourage her from driving. She has a tendency to not pay appropriate attention to the road and the other drivers. I dislike her dependence on the local Catholic church, but it is her only source, other than family, for social interaction, which I recognize is incredibly important as one ages - not for me, but for others, like my mother. 

I continue to see her on an almost daily basis, helping maintain her yard and sidewalks, grocery shopping, cleaning, whatever is needed. There's a social aspect to it, too. Judge Judy plays in the background as we share bits of news, oohing and awwing over the progress she's made on her latest jigsaw puzzle. Inevitably, I have to do my welfare check: What did you have for lunch, today? What's for dinner tonight? Etc. 

We've made everything as easily accessible as possible. Her bathroom was recently completely redesigned, with a stackable washer and dryer installed on the main floor in a closet. 

During the past two years I've made it no secret that I am tired and need someone else to carry the ball. Both my younger sisters have pledged to step up to the plate and relocate my mother, but nothing concrete, no action plan has been put into place, so there seems to be no timeline involved. 

I know it might strike some as selfish, but I want to be selfish. I want to experience that without guilt. I want the sort of freedom so many others enjoy... 

Part of me knows that if and when she moves, the time and energy I've supplied will simply be absorbed by one of my other obligations. And there will be a part of me haunted when I no longer have to drop whatever I am doing at 4:00 pm, Monday thru Thursday and hightail it over to her house. 

It's not the time that I want back.

It's the emotional energy. My mother and I have a long and twisted history. There are so many landmines which I have become very adapt at steering clear of all these years. They can't be detonated, for what purpose would it serve? There are a few I know we would not survive.

So, it's the biting of the tongue. Ignoring the occasional comment, dodging a pointed question, and allowing certain notions to go unchallenged. 

But, over time?  This denial. It takes its toll. 

In my head, I picture Julie Harris in The Haunting. Having taken care of her mother for years, once out of the house, in the real world, she's a fragile pile of nerves and neurosis, the product of unnurtured, unrealized dreams. Never allowed to fully separate herself from her mother, she's unable to adapt to this new found freedom. And, of course, it is much too late for her to grab any of the brass rings which served as hope-filled life preservers all those years stuck taking care of her aging parent. 

That's not me. 

But I am keenly empathetic. 

Now, how did a post about celebrating our mothers become all about me? 

Well, it's my party, too...

And I'll cry if I want to. 

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You know, I never know where a post is going until I get there.
And I'll be the first to admit...
I have an incredible propensity to be utterly insufferable.
- uptonking from Wonderland Burlesque

Pity Party - Melanie Martinez

Monday, January 18, 2021

In Honor of Martin Luther King, Jr. Day

In Honor of Martin Luther King, Jr. Day
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Wishing you all the very best...
- uptonking from Wonderland Burlesque

We Shall Overcome - Diana Ross


Saturday, December 19, 2020

Weekend Onesie: This, The Season of Want

Weekend Onesie: 
This, The Season of Want

This time of year, people are constantly asking me, "What do you want...".

I search my mind and struggle to come up with something... anything. Slippers. Thermal Socks. A Memory Stick. 

I feel the need to come up with something specific in order to avoid getting something 'unspecific'. 

I have drawers full of  'unspecific'. Future landfill, most likely, but for now, thanks to my need to please others, all those little treasures are snug and safe for the foreseeable  future.

The thing is... I don't 'need' any of that stuff. In fact, given that all my basic needs are currently being met and I am not much into 'owning stuff', there really isn't anything I want. 

Yet, here we are. 

This, the season of 'want'.

What drives it? The media? Social media? Celebrity worship? Our culture of consumerism and 'keeping up with the Jones'? Madison Avenue? Capitalism? 

We are trained at an early age to 'tell Santa what we want'. So, as adults, we are already pre-programmed to desire 'more'.

Well, this year... there are a lot of people and non-profit organizations who do not have wants... they have needs.

They need donations. Food, clothing, toys, cash... it all feeds the needs of those less fortunate. 

So, this year... keep in mind your favorite local charity and give a little something, if not of yourself, than from your food pantry or wallet. 

The Golden Valley Animal Humane Society is my non-profit of choice this year. I give every year, but this year, due to the cancellation of a number of their normal annual fundraising events because of the Covid-19 epidemic, they are hurting more than usual. 

Yes, I know; they are always asking for donations. They always have their hands out, wanting a donation.

This year is different.

When someone is truly hurting, that is when a want becomes a need. And if you want to be a part of, live up to, or truly experience this season? 

Then give. And give generously. 

Yes. That is all I really 'want' this holiday season.

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Happy Holidays!
Enjoy this very special time of year.
Wishing you all the very best of all things. 
- uptonking from Wonderland Burlesque

Bless The Beasts And The Children
The Carpenters

Friday, June 20, 2014

Waving 'Hello', Waving 'Good-bye'...


Waving 'Hello', Waving 'Good-bye'...

My dad is back in hospice.

This will be the third time.

His Alzheimer’s has progressed to the point where his brain has stopped sending signals to various parts of his body.  He now spends entire days in a kind of infant-like sleep where we are barely able to keep him awake long enough to eat a little something.

My mom has been his primary care-giver for the past five years, with a lot of help from me and my ex.  In the past year, she finally agreed to contract people to come in and bathe him.  And a year ago, a hospital bed was purchased and placed in the living room.  This bed, his wheelchair, and his assisted lift chair are where he spends the bulk of his current existence.

The nurse in charge has made it clear to my mom that there will soon come a day when my dad will be confined to his bed and eating will no longer be a priority.  The hospice staff is there to make sure he is comfortable and pain-free.

I visit once a day and stay for at least an hour and a half.  Typically, when I arrive and give him a hug, my dad will wake long enough to stare at me blankly before drifting off once more.  Then I make myself a cup of coffee and visit with my mom, checking to see if she needs anything.  I check the house to make sure things are being maintained.  I mow the lawn.  But the purpose of my visits is primarily to break up the monotony of my mom’s day. 

Caregiving is difficult.  In this case, it is relentless and it is exhausting. 

Sometimes, my ex will visit at the same time.  He’s a talker, so he keeps my mom thoroughly entertained.   Frequently, the animated conversations will jar my dad awake.  I’m always on the lookout for these moments.

I will wave and talk to him, doing my best to elicit a smile or some kind of reaction.

Yesterday, during such a moment, it occurred to me that these days…

…I don’t know if I’m waving ‘hello’, or waving ‘good-bye’.

I want him to know I’m there.

Even though it’s hard for me.  Even though it’s emotionally exhausting.  Even though it pains me to see him fade away.

I want to be there.  And I know I need to be there…

…waving ‘hello’…

…and waving ‘good-bye’.